Yes, we are still alive.
There is not much too new for us. We go to all sorts of good events and are super busy time.
After the Great by the epilepsy in school and many other areas first hurled back properly had, she now has much again caught up and even become a bit more reasonable. It benefits from our very strictly regulated, I think that gives her much strength and support. She laughs again and often much, I feel it each time to the heart, it's so nice to experience them happy and carefree.
The new drug against epilepsy since she is now little more than half a year and it seems generally well tolerated at the morning it is often zimlich bad, but we currently have to take into account and compared with the last medication, it is even "the much lesser evil".
has said before she caught up quickly, especially in school. I was very pleasantly surprised from their "report card", I would not have thought that led them to these difficulties as well start cutting. Basically, it has now in less than 3 months from the substance made by the entire half year, despite the fact that nearly 3 weeks have been winter vacation, and this winter she was home several times with infections.
She goes so for some time 3-4 times per week in the homework so I'm relieved better and have more time for the dates of minke nose. We are still pulling for a while, even if it is exhausting and connected with a tight schedule.
In November I had the story of the school Join mentioned r, after the severe problems they had in school, have In January, we ADS diagnosis made, and the film is apparently negative. The "final call" is still out, but at first glance, they probably had absolutely no ADHD symptoms. Nevertheless, child psychologist also tends to think that we should try to apply for a school companion, so that the application is faster, but again if you encounter problems with epilepsy. I can understand this view and the argument already, but I did the work and the administrative procedures that, and frankly I have enough other tasks and zimlich'm pissed about this idea and the work it does for me. wait what time is also apparent ...
The psychologist would be like to have a picture make of my daughter at school and watch them in class WHILE the classroom, and then there will be a round table in which all parties give their two cents again. There is no date for it yet.
dwarf nose has become in January already 7 years old, I can not believe how quickly time passes, the first 5 years and 5 months since the leukemia.
We bravely (though hochmotivert not always) for physiotherapy, occupational therapy and special education, also from time to skin doctor (because of the nevi make present again a proper thrust), eye doctor (because it includes the eyes lit constantly, and because the rheumatism and like to propose to the eyes), and of course every 4 weeks for follow-up and for smaller issues also times for a pediatrician.
Physical therapy, he now has a lot of things "learned", for example, jump and stairs "go right" (he was only after the rheumatism in "Baby style" up and down the stairs) and jump, and more. It lacks, of course, to many, but overall it is slightly uphill.
The occupational therapist cares mainly for the hand-finger joints, which, unfortunately, he still can not properly use five because they were not pain-free. The joints can not "move freely", but only at a small angle, so is learning to write and many other things of course difficult, the total motor is simply not wide age-appropriate, it is still not progressing as well as in the knee joints.
He has also, unfortunately, get what extent, problems with the shoulders, and which issues come to the present we discuss next week at the follow-up.
goes to school, he remains very happy, he loves his teacher about anything and comes in spite of its size of 104 cm and its problems along well with classmates.
Otherwise he is currently uneven and often, unfortunately, a bad mood, he wants to much but he can not, and frustrated of course. And then he must also make Mama often says what can and can not do what he wants and just how awful for him! ;-) So small it may be, he has great self-confidence and an even larger door. :-D
Well, and I am concerned, just as it is of such a person has a lot to the ears. I'm almost continuously since mid-December, ill. I have now for months that "Job 3" alone pulled for lack of adequate child care. This week and next are now some "nanny" to us, participate for a few hours of our daily life and introduce themselves. I hope that what is the right choice so I'm once again a breath of air.
I also think now about it in a treatment or rehabilitation to go, but is in the amount of disease is probably not easy to do justice to all, and a bit I shy away from the stress which the program then brings. For me, because of the many events at something not much rest in there, but it would be much more easily very good time to get out from the daily grind. I'm going generally prefer two weeks after Egypt, where they lie all day on the beach with the kids can dig in the sand. THE I call recovery, but a treatment or rehabilitation may have deserved a chance to visit. ;-)
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